Since I have a few minutes, I’ll type up some of the story.

She’s fine, 100% better but I’ll start from the beginning.

Last Monday on the 7th, I noticed her face was quite flushed, I thought she may have had a fever, i noticed this while we were driving to the store. When we got there, the redness was gone and she had a few spots on her cheeks. I thought, well she must have a heat rash, and didn’t think again about it until that evening when I was getting her ready for bed. I put her pjs on and noticed more spots, nothing too alarming, they were on her belly and back. I thought maybe an allergy to the amoxil but it was about 3 days since she last had it. I also wondered if maybe she was allergic to the carpet in the new house. She went to sleep easily that night and woke up twice, the second time hubby took her to our bed. She was fidgety and itching her legs but i never turned the lights on, so i didn’t think anymore of it. The sun came up in the morning and I was SCHOCKED at what we saw. Her cheeks were bright bright red, with spots ALL OVER. Her lips were extrememly swollen, cracked and bleeding. I knew something was terribly wrong, hubby took her to ER and we got a consult to see a pediatrician later that day at 2pm. THis was around 8am that hubby had her seen. We waited at our house and she slept pretty much the whole time. Her face was getting worse as the hours passed, blisters formed on her cheeks and they would burst her face was getting so big.

When I saw the ped. she had told me she was immdiately admitting her and was starting her on IV fluids, because her mouth was also affected. She knew right away it was most likely  So there at the hospital they got the iv started about 830pm, this point she was very lethargic, and VERY swollen and her whole body was reddened. The dermatologist was consulted and came in too around 9pm. There they stayed at the desk, talking to IWK and decided at about 1130pm that they were going to airlift her to that hospital (which is about a 70min flight) Well I knew something was desparately wrong, b/c they normally don’t do that, they’d drive (about 4hrs) if the pt was stable. IT was progressing so fast. There is no cure, nothing they can do but supportive care, that’s when I think i was a little in shock. I was terrified it’d affect her airways and she’d be intubated or crash on us. FInally the next morning she was sent out. WE were admitted directly to the pediatric ICU and that’s when all the testing started. I must mention she also had a catheter and NG inserted prior to leaving.

When there we were bombarded by DR. after Dr. specialist after specialist. I may have spoken to about 10 different Dr.s in about 4 hrs. They only thing they could offer was to give her IV IG infusion to help, but that wasn’t proven to be effective either.

I’ll write up the second part another time. Nolan’s crying.

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11 Comments (+add yours?)

  1. Jessica
    Apr 16, 2008 @ 20:00:23

    The poor girl!

    And you must’ve been so scared! I’m glad she’s doing better now.

    Reply

  2. Chas
    Apr 17, 2008 @ 00:47:54

    I’m very interested to find out the rest of this story, but I’m so happy you told us she’s fine now! I’d have been worried about her otherwise. Poor little Ava!

    Reply

  3. my4kids
    Apr 17, 2008 @ 02:59:21

    Oh wow how scary! I do hope everything is okay with her now.

    Reply

  4. liz
    Apr 17, 2008 @ 17:25:54

    Oh my goodness, poor little Ava. How scary for all of you. Like Chas, I’m interested to hear/read the rest. Thank goodness you’ve let us know that she’s doing just fine now.

    Reply

  5. denise
    Apr 17, 2008 @ 20:27:57

    Holy shit batman! I am so so sorry. I have never even heard of that. Polease don’t wait too long to let us know the rest of the story.

    Reply

  6. twinsRus
    Apr 17, 2008 @ 22:32:01

    Hey Sara! Sorry to hear about this. My youngest daughter had a severe allergic reaction to sulphates. She had been taking an antibiotic for a week and was finished taking it and then the next week she had started in the the breaking out and lips swelling up and trouble breathing…luckily she was put on steroids for several days but the spots covered her entire body and even inside her mouth and on the bottom of her feet and hands…..it was horrible!!!!!!! They finally turned the color purple and didnt go away for weeks…They told us that she isnt supposed to ever take any antibiotic with sulphates ever again…It was very scary…I hope she is doing better…When it rains it pours on ya dont it? ttyl heather

    Reply

  7. nellies nook
    Apr 18, 2008 @ 22:44:17

    Holy CRAP! I am so sorry. How freaking scary. I am so glad she is doing ok. We are going through some rough times with Ellie right now and trying to figure out why she has been vomiting/having diahrrea since Tuesday and I am so stressed about it… I can’t imagine how you were feeling you poor thing!

    Reply

  8. MrsSSG
    Apr 18, 2008 @ 23:08:31

    oh I am so glad you started the post saying she was 100% better…..I just cried reading it thinking of what I would have been feeling if I were you…..I am SO glad she is better, let us know how she is, k?

    Reply

  9. Squishy Tushy
    Apr 19, 2008 @ 14:41:57

    OH MY GOD!!!!

    Thank you so much for starting the post how you did…

    Reply

  10. Jaimie
    Apr 19, 2008 @ 19:56:38

    OMG!!! I’m so glad you started by saying she is okay because she certainly isn’t where you ended. I can’t imagine being able to cope with that. You sound so calm now. I get so worried every time my son gets hives (it seems to happen a lot) that it will get worse, but I can’t imagine being in your situation! b v

    Reply

  11. erin
    Apr 22, 2008 @ 15:34:59

    Oh my gosh that is so scary!! Reading this brought tears to my eyes…the poor thing I can only imagine what that was like to go through for you all. I’m glad you said she’s okay now. My gosh I can’t believe this happened. I’ve never heard of this before until now. I’ll be looking for the rest of the story of what happened. Thank God she’s ok now!!!!

    Reply

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